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Press: Losing life

Posted on October 20, 2014 by edu
This is the first article in a series on the 200,000 Catalans living sick with Central Sensitivity Syndromes (SSC), pathologies such as Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (MS / CFS), Multiple Chemical Sensitivities (SQM) or fibromyalgia , diseases recognized in Spain and classified worldwide for decades. Most of these patients have two SSCs at the same time, diseases that alter the immune, endocrinological and neurological systems. Studies show that up to 80% of those affected are disabled to carry out normal activities. They do not have access to public health because or there are no specialists in these diseases in their region (for SQM there are none in Catalonia), or, when there are, waiting lists are two years, and if they get access to a specialist , the analytics and treatments that are already available are not made (according to the few specialists, for reasons of cost). The few patients with SSC who have income, or family members with sufficient income, go to private healthcare paying between 6,000 and 9,000 euros a year.

Although in 2008 the Parliament of Catalonia voted unanimously for Resolution 203 / VIII, according to which health care would be provided to patients with SSC and to any other patient (including pediatricians for children with these diseases), it has not been complied with.

Most of the sick live unattended, isolated, in precariousness and inattention. Forgotten

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